Trigeminal Neuropathy Anyone?

I haven’t been on here much the last couple of days, I’ve been down with a flare of trigeminal neuropathy.  According to Wikipedia:  “Trigeminal neuralgia (TN, or TGN), also known as prosopalgia, suicide disease, or Fothergill’s diseaseis a neuropathic disorder characterized by episodes of intense pain in the face, originating from the trigeminal nerve. The clinical association between TN and hemifacial spasm is the so-called tic douloureux. It has been described as among the most painful conditions known to mankind.”  I can attest to that.  It’s definitely up there with your worst migraines.

Photo credit: Wikipedia

They don’t know what causes TN, but mine is caused by my MS, and doesn’t act like either typical or atypical TN.  Typical TN attacks usually last from several seconds to a few minutes and repeat up to hundreds of times throughout the day.  Mine starts in the morning and lasts through the day, without pause, generally getting worse as the day goes on.  The only relief coming when I sleep.  I’ve had flares that lasted 5 days or more.  Today is day 4 of this flare, but today is a little better so far, and the first day wasn’t bad.  In fact I’ve had several incidences of minor pain in my ear and face.

I’ve suffered with TN for more than 30 years.  It’s only gotten worse as time goes by.  Now if not for Lyrica I wouldn’t have any relief at all.  Now the Lyrica isn’t quite doing it.  I have an appointment with my neurologist tomorrow to see if I can raise the dosage.  I find that since I have had a couple of years of relief, this break-through pain is almost more than I can stand.  I used to go to work in all this pain, but it just wears me out now.

Well, that’s my update.  Hope you’ll forgive me for falling behind on my reading (again).  Right now I’ve got to lay down and nap, the pain is increasing.  

17 thoughts on “Trigeminal Neuropathy Anyone?

  1. Dear Linda, please know that you are in our hearts and minds and prayers as you face this time of physical testing and pain. Sleep all you need to…everything else takes second place to your health. May your restoration be soon!

    Love and Hugs,


  2. Hey Linda,
    hope you get well soon! Are there any things you could do besides classical “drug” therapy stuff? E.g. accupuncture or something like that? I mean your dose might be limited…

    1. I have been successful in the past meditating the pain away, but I guess I’m out of practice because I couldn’t make the pain go away this time. But I will continue to meditate and next time this happens (and I know it will) I will be more successful.

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